Thursday, 5 March 2015
Cant I just bury my head in the sand??
Iv been living with autism in my life for as long as I can remember. Pretty much my entire parenting life. I came to terms with my beautiful toddler being diagnosed with this really quickly. Quicker than I should have now that I think about it. And I've been the warrior mom from the beginning. If there was an obstacle put in his way, I made damn sure we moved it! Whatever assessment or service he needed, waiting wasn't in my vocabulary. I found the expert parents who knew their stuff as quickly as I could and they told me more than any professional would!
Getting early intervention, school placement, speech and language, occupational therapy, it came way too easy. Although the slt and ot didnt last as long as he needed. I am blessed he has an amazing team of therapists around him though and Im one of the lucky parents who actually gets to see them and talk to them for help. Even his social worker is a gem. Not many autism parents are this lucky. I've done all the courses, read all the books, and for the 8 years or so since diagnosis we've managed. The main problems are behaviour, and aggression due to different things. He has speech, Thank god!!! But expressing himself when hes upset, over stimulated or frustrated is impossible and he lashes out. Sometimes badly. He has an addiction to food which is probably the number 1 cause of anger. I have to say enough at some time and NO isnt a word my son understands.
This also means hes over weight. At ten, hes 5ft something and 10 stone 5lb. We've met too many specialists to check for genetic problems, diabetes, everything, iv lost track and it was during these tests they confirmed his testosterone levels are high. Which means, yes, puberty is on our doorstep.
Hello body hair. Hello body odour. Spots, shaving, hormones,wet dreams and oh my god masturbation. No one tells you about this part when they tell you your little boy has autism. This is a whole new chapter that I dont want to write. But like it or not, whether his mind is ready, his body is, and Im going to have to help him through it.
Where do I start? How do I start? When do I start? HELP!!!!!